“Living with Epilepsy.” “Let’s talk about it.”

Good Morning All!

Earbuds in of course, listening to ELO’S  beautiful yet strengthening song “MR. BLUE SKY”. Please download this song to your music Library. This song connects strongly with my experience yesterday.  WOW is all I can say.

It was an honor meeting with the brilliant Town of East Haven, CT., Representative James Albis.  He will make a difference in helping with Epilepsy Outreach Programming as well as Epilepsy Advocacy in our beautiful Town.  I look forward working with him in the near future. So many are diagnosed with Epilepsy, yet keep it a secret due to unfortunate stigmas associated with the diagnosis and lack there of knowledge, understanding and resources that only Advocacy and Outreach Programs can help with.  If knowledge through Advocacy began at the elementary school level, long term this will help all understand Epilepsy.

 “An investment in knowledge pays the best interest”. – Benjamin Franklin

Remember, Epilepsy does not define who you are as a person.  My goal is to work in conjunction with The Epilepsy Foundation of CT., and The Epilepsy Foundation of New England, as well as with Legislation in both CT. and Boston. Yesterday was an amazing day. I met amazing people with amazing stories.  The training was perfect for all to help many in Connecticut, as well as how to make a change with the help from our Legislation through our meetings with them.  How to help many who cannot afford seizure medication, and the need for further research and the need for Advocacy, local Outreach Programs and additional resources.

Thank you to all from The CT. Epilepsy Foundation,  and the brilliant Mr. Murphy from The New England Epilepsy Foundation for the amazing Training during this Educational Seminar, Looking forward to next year.  But, until then See many May 13th in West Haven for “Sharon’s walk, run or ride”.  Mathew, I thank you for being there yesterday as well as supporting my endeavors to help educate and change Legislation as well as  Advocate for Epilepsy.


Remember… Epilepsy, Let’s Talk About It….

Keep Smiling..



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